Thursday, September 30, 2010

Leaving the house today


.... flying out early tomorrow morning.  Getting everything in place so all is looked after while we are away AND making sure all arrangements for the trip are in place is more than even two competent administrators (hubby and I) can handle!  How do those sicker than I do this?  With lots of help, I assume. I want to be that helper for others.
The cognitive chaos is getting to me - lists abound!  Not sure if the cognitive fog is illness or environmentally induced!  Off to the chiro to get adjusted - this really does help me think more clearly, although there is absolutely no science or explanation for this.   I am not getting enough sleep; for mysterious reasons this always affects me in two ways.  I have a temporary (a few days) strong gait and movement, but hands, feet, lower legs and face are buzzing - like the trick buzzer a clown might use when he invites you to shake his hand! WARNING - if this buzzing continues, an attack is imminent!  Usually this means calling on the arsenal of interventions that have worked in the past.  Today - just have to keep getting ready.
Walked along the driveway today in the sunshine, basking in the colors of Fall that are present in combination with warm weather! 

One more sleep …….

Tuesday, September 28, 2010

Short, to the point, and slightly uplifting

These are the criteria  for a  'good' blog post given to me by daughter Ashley.  So, here is post 2.


I am very excited about my time in Spain BEFORE I go to Poland.  A distraction? Perhaps.  I am happy to be part of this experiment with my fellow MS sufferers - but I HATE sitting in MRI machines, being poked with needles and being fussed with!


I hold no expectations for my functionality after the procedure.  I have many levers I pull regularly to stay well enough to remain a functioning, legitimate member of my family and the world - medication, supplements, exercise, meditation, physio, massage, chiro care, spiritual practice ...... this will continue no matter what.  I do have hope that the really bad days will be fewer and the amounts of these interventions less.


Today:
1.  Got out of bed stiff as a board.  Stretched for 10 minutes.  This helps somewhat.
2.  Can not feel my hands or feet.  Can't get what I need out of my pockets.  Nothing I can do about this.
3.  Walked the dogs to the end of the driveway (1.5 city blocks) and back, using my cane.
4.  Fatigue level average.  Can't attend to it - too busy.  Keep going .....
5.  Cognition - fine.
6.  Muscle tightness shoulders, back, both calves.  Can't take Baclofen if I want to walk.


Should take my shot of Copaxone today, but likely won't be able to muster the emotional and psychological energy required to do so!  And feeling well enough that motivation not strong enough.


Took 7,000 IU Vit D, multivit, fish oil and baby aspirin.


This is a start - I will document daily activities and state of being for two weeks before treatment.  This gives a point of  reference for after.


Cheers!

Thursday, September 23, 2010

Getting Ready

This is my 'test' post as I as prepare to write daily and share the angst of getting ready as the excitement  builds.  21 more sleeps until  the procedure with Dr. Simka in Poland.  Today was my last visit to a Canadian doctor on this issue before I go.  The forces of the universe put a helper in my path; my family doc's nurse is from Katowice!  She provided messages of reassurance of the quality of care there.  I continue my frantic attempts to get everything done before I have to leave.