These are the criteria for a 'good' blog post given to me by daughter Ashley. So, here is post 2.
I am very excited about my time in Spain BEFORE I go to Poland. A distraction? Perhaps. I am happy to be part of this experiment with my fellow MS sufferers - but I HATE sitting in MRI machines, being poked with needles and being fussed with!
I hold no expectations for my functionality after the procedure. I have many levers I pull regularly to stay well enough to remain a functioning, legitimate member of my family and the world - medication, supplements, exercise, meditation, physio, massage, chiro care, spiritual practice ...... this will continue no matter what. I do have hope that the really bad days will be fewer and the amounts of these interventions less.
Today:
1. Got out of bed stiff as a board. Stretched for 10 minutes. This helps somewhat.
2. Can not feel my hands or feet. Can't get what I need out of my pockets. Nothing I can do about this.
3. Walked the dogs to the end of the driveway (1.5 city blocks) and back, using my cane.
4. Fatigue level average. Can't attend to it - too busy. Keep going .....
5. Cognition - fine.
6. Muscle tightness shoulders, back, both calves. Can't take Baclofen if I want to walk.
Should take my shot of Copaxone today, but likely won't be able to muster the emotional and psychological energy required to do so! And feeling well enough that motivation not strong enough.
Took 7,000 IU Vit D, multivit, fish oil and baby aspirin.
This is a start - I will document daily activities and state of being for two weeks before treatment. This gives a point of reference for after.
Cheers!
Thanks for sharing your thoughts, as I know you have so much to contribute. I can't wait to find out what differences you see after your veins are opened, if any, and what you think of the care you get, of your doctor, of Poland.
ReplyDeleteYou GO!
Hey there Practical Prof, we're comin' with you on this journey! We'll be there, every step of the way, sending good thoughts, vibes, and prayers. "Talk" to you soon. D & J
ReplyDeleteI like Ashley's criteria, but would like to add two more - truth and humour. There will be times when only truth will be appropriate. And there'll be times when humour is the uplifting ingredient when the truth is not.
ReplyDeleteBlog style is unique to the individual. So if you feel like ignoring all our criteria do so. I think we too often forget that the blog reader has a responsibility too. We are half of the value equation of any blog.
You are on a personal journey that requires great courage to make it this public. A quality I know you demonstrate every day.
Giver hell! A friend's niece (26ish) had this done in Mexico about three weeks ago and, after three years of rapid deterioration and incapacitation, says she suddenly feels fine. Clear headed, no head aches, return of balance and feeling and mobility. Fingers crossed!
ReplyDeleteThanks to you who venture here ... and for your generous, kind comments and encouragement. Right now just getting out of the country is a major undertaking ;_0
ReplyDeleteCarly and I wish you the best of luck. We'll be following your blog throughout your journey. Safe travels :)
ReplyDeleteThe kids and I are with you through this.
ReplyDeleteBusy here Sydney gets tested for Celiac today and Caiden gets his first speech therapy session tommorow.
I have started career couselling to get things started for our future.
Know our thought are with you.
hugs and kisses