Our daughter has arrived! Those who know her will agree when I say she brings much energy to everywhere she visits. What fun! Now that I have debriefed her, she has put away the knives she brought to deal with the doctors who didn't provide me with a treatment; it is hard to fault them because I have good blood flow ;-).
Yesterday we said good-bye to our treatment group members who are on their way back to Canada. We believe we have made life-long friends as we are now bonded in our adversity. One group member is still here and back in the hospital. Her wound did not coagulate and she was accidentally given an extra dose of blood thinners – very dangerous. She is recovering in hospital; we visit her everyday so she does not forget that going home is just around the corner.
There is so much to consider, and so much work still to do regarding CCSVI. The vast majority of patients being treated here in Katowice are from Canada. We have seen every possible outcome for patients in this experience – the good, the bad and the ugly. And, I will add, the worst and the best of medical care. I am far more inclined to lobby the Canadian medical system to bring this treatment home than I was before. Canada is where our MS patients should be working out their vascular issues.
At the moment, I need to put this aside and get fully immersed in work again. Our paper for the conference in Budapest has been nominated for the Best Research Award – hurray! Nice to be noted for all your hard work once in a while! Time to start getting ready. In the meantime, my hands and feet are warm ….. the rest of my symptoms about average annoyance. As a researcher, I am committed to using all that baseline data I collected on my health. Now to find an experimental treatment to employ!
Tomorrow we will visit Auschwitz and pay our respects to those who lost their lives there. I know it will spark much serious debate among us. It will be a significant moment of reflection on the fragility of the human psyche and physical life.
Take good care .....
TPP
Well Doc, you sound in a good space with a great attitude, not that we expected less from you. It goes without saying that you now have a new cause and would be an excellent spokesperson for the MS community in pushing hard to get more research done in Canada. Your work is cut out for you.
ReplyDeleteGlad to hear your daughter has been able to join you. Travel is an education in itself - what a wonderful experience for you all. Glad she's put the knife away!
Several people we know who have visited Auschwitz say it is a life altering experience, one they will never forget.
Congratultaions on your paper being nominated for Best Research Award at the upcoming Budapest conference The very best of luck with this one - you deserve some good news about now.
Glad to hear your hands and feet are still warm.
Hang in there baby!